There are billions of individuals inhabiting this planet, each one of us entirely distinct. We possess unique physical features and personalities, not to mention our singular family units that support us from the very beginning. The arrival of a new member into the fold always brings forth a mix of jubilation, tears of joy, and anticipation.
Yet, when Adalgisa Soares Alves anticipated the birth of her daughter Graziely, she had an inkling that something was profoundly amiss. During her pregnancy, Adalgisa’s abdominal discomfort grew increasingly severe. Following childbirth, it became evident that her daughter bore a rare condition, a condition that has now garnered global attention.
Every moment, every second, a fresh life comes into being somewhere across the globe. A newborn human, experiencing the light of day for the very first time, with hopes of growing up surrounded by love within a nurturing home.
Even before Graziely graced the world with her presence, her mother sensed her uniqueness. Adalgisa Soares Alves, residing in São Luís in northeastern Brazil, felt intensifying pains in her abdomen during the eighth month of pregnancy. A distinct reason for these pains would soon be unveiled.
Upon Graziely’s birth, she was diagnosed with hydrocephalus, colloquially known as “water on the brain.” This rare condition involves an abnormal accumulation of cerebrospinal fluid within the skull, leading to increased pressure and disproportionate head growth, as reported by the Daily Mail.
Given the gravity of the diagnosis, medical professionals didn’t anticipate Graziely surviving for long. They cautioned Adalgisa to brace herself for the worst, suggesting they might have only a couple of months together. While this news was incredibly arduous for Adalgisa, who was already a mother of two, the subsequent years have demonstrated that the doctors’ predictions were off the mark.
This resilient young fighter has defied expectations, celebrating her 30th birthday in 2023. “I always hope that she will live for many years. She radiates positive energy, and I feel a serene overflow when someone visits her,” Adalgisa shared in an interview with the Daily Mail.
However, due to her condition, Graziely cannot see, speak, or walk. Hydrocephalus is a relatively uncommon condition in infants, affecting fewer than one in every thousand births. Swift diagnosis and appropriate treatment are paramount to ensuring the best outcomes for affected infants. Adalgisa is the devoted 24/7 caretaker and aide to her daughter. Presently, she heavily relies on disability support from the Brazilian government.
“I’m dedicated to Graziely, and it brings me immense joy to witness her well-being, supported by me and our entire family. I don’t work; my focus is her care. I derive happiness from taking care of her, and her smile is my reward,” she remarked, adding, “I never lose hope because I am a woman of profound faith, prioritizing God above all else. I offer prayers abundantly each day.”
Adalgisa frequently shares photos and videos on her Instagram account, shedding light on the myriad challenges her family confronts. With over 11,600 followers, the account has rallied global support for Graziely and her family. Amidst the outpouring of positivity, occasional negative comments arise. In such instances, Adalgisa swiftly stands up against them.
Being labeled a ‘giant baby’ at birth doesn’t faze her, as people highlight the positive undertones of the term ‘baby.’ However, it’s the derogatory remarks that provoke sadness and frustration. “I don’t find ‘baby’ cruel because it carries an affectionate essence, but when they refer to her ‘big head,’ it saddens me,” she conveyed.
Nonetheless, love prevails. A video that has garnered substantial traction, with over 110,000 views, showcases Mother Adalgisa tenderly feeding her daughter. “God bless you immensely,” one viewer commented. “You’re an angel, a beautiful soul; may God’s blessings be with you always,” wrote another. A third admirer chimed in, “This woman is an extraordinary mother.”